Monday, August 07, 2006

No, I'm not just being lazy

Life at Casa Melinda has been rather rough as of late. First, something I've learned recently, NEVER EVER break your laptop, especially if it's your only computer. They're not as easy to fix as you'd think, especially when you're too damned broke to buy the parts. Life without an internet connection has been a bit sucky. Secondly, I'd rather not go into too much detail, but due to serious health concerns and the side effects of the meds used to treat them, I've been physically and mentally exhausted most of the time. Just putting in my 40 hours has required all of the energy I have. (I actually considered giving up on writing entirely, but the webkahunah convinced me that I should keep on keeping on.) My docs are working with me on ways to combat the exhaustion since going off the meds would place my life at risk, LITERALLY. Nearly every day has been a struggle between my desire to get things done (You should see the train wreck that is my apartment.) and my body's violent opposition to anything but rest and sleep. I may actually write something at some point about my condition, as it is a rare one that is often misdiagnosed and very difficult to get under control; some kind of public service announcement type entry. (Most doctors don't even know what it is.) Brief summary: It's called prinzmetals syndrome or variant angina and is characterized by spasms in the arteries that feed oxygen to the heart. Ever had a muscle spasm? Imagine one in your heart. Yeah, they suck. Hit the link and if you think this may apply to you, run don't walk to your nearest cardiologist.
Your patience is greatly appreciated.
Shalom Aleichem,
Melinda Barton

3 Comments:

Anonymous Anonymous said...

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10:50 PM  
Blogger Elle said...

Do you also suffer from coronary artery stenosis...you can tell I've been googling can't you? :)

12:38 AM  
Blogger Melinda said...

Dreamwalker,

No, I'm one of those 1 out of 4 Prinzmetals patients (about 1 out of every 100,000 for the general population) who have the condition, but show no other signs of coronary disease. Otherwise normal arteries, healthy cholesterol levels, healthy blood pressure, etc. The docs think I must have inherited it considering I was diagnosed about 25 years earlier than the average. Most develop the disease between the ages of 51 and 57. I began having the first minor symptoms in 2002, when I was 26. The symptoms became severe in 2003, but I was misdiagnosed with gastric reflux disease. I had my first m.i. and developed an arrythmia in 2004, when I was finally diagnosed. It took more than a year and nearly 10 med changes to get me stable, although I'm still at a pretty high risk due to the combination of two medicines required to treat me. (It is advised that they not be taken within 24 hours of each other, even for a one-time dose. I take them both every day, 12 hours apart. This unfortunately, increaes my risk of sudden death.)I'm now 30.

9:16 AM  

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